Public Expectation and Patient Experience of Integration Of Healthcare

The Change Foundation commissioned this literature review to inform our first health integration report, Who Is the Puzzle Maker? Researchers reviewed 53 international qualitative studies to report on the perceptions and expectations of patients and their families with respect to ease of navigation through healthcare and related systems. The studies focus on key experiences of patients and families dealing with chronic illness and parents of children with special healthcare needs. The report concludes that integrated care should be about putting the needs and expectations of the patient before those of institutions or healthcare providers. Further, if we want patients to take charge of their care, we need to consider what will best enable them to do so. An effective way of doing this is by planning services with patient needs in mind.

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