Shedding New Light: One Caregiver’s journey

Shedding New Light: One Caregiver's journey Download Sara Shearkhani's reflections on being a caregiver.

In March 2015, The Change Foundation formally released Out of the Shadows and Into the Circle, its 2015-2020 strategic plan focused on improving the experiences of family caregivers in the Ontario health care system and their interactions with health providers.

The first year of the strategic plan outlined a comprehensive period of research into the existing literature, legislation, and policy documents that currently exist on the stages and experiences attributed to caregiving. As part of this process, Sara Shearkhani worked with The Change Foundation to complete a literature review to summarize and synthesize the last two decades of caregiving research, as well as to reflect on her own experience as a caregiver.

Sara’s experience as both a researcher and a family caregiver helps to bring a unique perspective to the roles and responsibilities inherent in caregiving. Her reflections present a poignant picture of someone wrestling with the evolving real-time experience of being a caregiver, while also finding answers and insight in academic, peer-reviewed literature.

Shedding New Light: One Caregiver’s journey is the result of Sara’s work. It features an executive summary of the comprehensive literature review completed by Sara as well as her reflections on her own caregiving journey. Together, the papers that make up Shedding New Light provide a balanced and comprehensive standpoint on how the role of caregiving can be viewed.

The Change Foundation gratefully acknowledges and thanks Sara for her dedication and thoughtful approach to this work.

Papers and Related Resources

For more information, or to access the full literature review, please contact:

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Becoming a #caregiver can be an overwhelming and confusing experience, but knowledge is power. The Caregiver Wishlist discusses some of the things you can expect, and some of the things you can do to make your experience a little less stressful: