When we launched our strategic plan Out of the Shadows and Into the Circle, bringing a new focus to the role of family caregivers in the health care system, we wanted to listen and learn from family caregivers as well as frontline health care providers. To do that effectively, we created The Caring Experience project. The Caring Experience was instrumental in allowing The Change Foundation to better understand the experiences and interactions, as well as the common ground, between family caregivers and those working in Ontario’s health and community care sectors.
With the Ontario Caregiver Coalition, the Foundation met with nearly 300 caregivers across Ontario during The Caring Experience through various engagement methods including caregiver workshops, one-on-one interviews, and journey mapping activities. In addition, the Foundation also reached out to caregivers using short online surveys to broaden our reach provincially.
Stories Shared, Voices Heard: Ontario’s Family Caregivers is an in-depth report that captures what caregivers shared during The Caring Experience about their experiences and interactions with Ontario’s health and community care sectors. Most importantly, the report features key quotes directly from caregivers on what they want, need, and expect from the health and community care sectors to make their role easier. Appendices within the report provide an overview of the main engagement methods as well.
The Change Foundation believes this report provides unprecedented context on how caregivers experience Ontario’s health and community care sectors, providing a boon of insight for those working to improve the system. It also builds on the four major themes outlined in the Foundation’s Out of the Shadows and Into the Circle: From Listening and Learning to Action report.
Report and Related Resources
- Stories Shared, Voices Heard: Ontario’s Family Caregivers (PDF)
- Caregiver Resource Hub (Webpage)
- Changing CARE (Webpage)
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