Caregivers as Partners is an educational series for providers that helps them improve the experience of family caregivers through practical tips and examples.
Ready to Implement
This toolkit houses the resources and tools we – and the Changing CARE teams – have created to help you implement co-design and caregiver engagement in your organizations.
Co-designed by providers and caregivers, the Time to Talk toolkit is a self-recognition and support tool that aims to facilitate awareness of caregivers – their roles and the value they bring to being on the care team, and encourage meaningful conversations.
The Care Resource binder and the My Healthcare Journey binder have been developed to improve communication among health team members, enhance caregiver involvement and education, and facilitate effective care transitions.
Effective discharge planning involves the family caregiver to ensure they have the supports and education needed for a smooth transition from the hospital to the community.
Understanding Your Care Team has been co-developed with caregivers to help caregivers and patients understand the various types of providers that may be on their care team and their respective roles.
In an effort to universally recognize caregivers, The Change Foundation has developed a logo that can be used across initiatives that focus on caregivers. For example, the logo is being used in conjunction with the Caregiver ID.
Caregivers often provide insightful information that can be helpful for providers in better understanding how the patient is managing and coping with their condition(s). However, Information about and from the caregiver is not easily captured in a standardized manner in electronic medical records (EMRs). To facilitate improvements in provider and caregiver interactions, and enable caregivers a voice on the care team, EMRs can be adapted to ensure relevant conversations are documented in a dedicated space.
Recognizing that families and caregivers are an integral part of the collaborative care team, the Caregiver ID initiative was designed to formally identify caregivers within care settings and facilitate their participation and role as members of the care team.
E-Rounds not only extends the principles of Family Integrated Care by leveraging technology to enable meaningful parent engagement, but it addresses health equity gaps by addressing how our services can be more accessible and inclusive of the diverse families that we serve.
Each parent’s journey in the Neonatal Intensive Unit (NICU) is different and unique. To provide hope and support to parents currently living that journey, a series of videos featuring veteran NICU parents has been developed.
Organizations looking to engage and improve caregiver experience in their care settings can adopt a caregiver friendly framework and outline the rights of caregivers. Both tools inform staff, providers, patients and caregivers that caregivers are visible, and valuable, members of the care team.
The Caregiver Guide is a handbook, co-designed by caregivers and healthcare providers to support caregivers. Combining research, caregiver advice, and important information from healthcare providers, the guide aims to give caregivers a sense that they are not alone.
Often, a circle of care involves several different healthcare providers and it can be challenging for patients and their caregivers to remember the role of each provider on the care team. To support patients and family caregivers in being able to identify and understand the different roles on the team consider implementing a Care Team Description Wall.
The Family Caregiver Centre is dedicated to helping caregivers on their caregiving journey. Located in the Cornwall Community Hospital, the Centre gives caregivers access to a physical space where they can take a break, find information, or talk to someone who understands their experience.
Offered at Bridgepoint Active Healthcare in their Stroke Inpatient Rehabilitative Program, the Caregiver Training and Education Program proactively provides caregivers with equitable access to training and education, empowering them in their roles.
In alignment with the St. Joseph’s Healthcare London corporate Care Partnership framework and strategic priorities, a Patient and Family Partners structure is being developed to facilitate patient/resident and caregiver engagement across the organization - this includes a physical space for The Care Partnership Office.
To support self-care for parent caregivers, WoodGreen Community Services has integrated a parent self-care module into the existing Parent Outreach Program Curriculum.
Through a collaborative process with family caregivers, residents and staff the Improving CARE Together team developed new resources to help ease the transition from the community to a long-term care.
The Caregiver Resilience Pilot tests a model of care that aims to provide caregivers with temporary relief by offering a suite of services they can choose from, depending on their needs.
Two of the Changing CARE projects, Embrace and Connecting the Dots, developed local websites to support the education and awareness of programs, services and resources for caregivers and healthcare providers. Both projects used a co-designed approach, working with local caregivers and healthcare providers to develop the websites.
Healthcare organizations can support caregivers and enable them to better cope through developing local resources, such as a calendar of support group events, courses and education; a resource list of services available, publishing regular tips, and producing a series of videos where caregivers offer each other advice.
As part of our caregiver engagement and research activities, we have developed a collection of legislation, policies, strategies, and organizations directed at family caregivers. These resources provide access for individuals and groups looking to help improve the experience of family caregivers.